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Living with Motor Neurone Disease

A Motor Neurone Disease (MND/ALS) blog

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Tag: SYMPTOMS

  • Awareness

It is not only tortoises that hibernate

  • by onein400
  • Posted on November 5, 2015July 2, 2016
  • Awareness

Even if you don’t have a voice like Richard Burton, “bank” it ASAP

  • by onein300
  • Posted on October 2, 2015February 12, 2020
  • Awareness

Before #MND I used to be glass half full, now it’s 3/4 full – maximising what you still have

  • by onein400
  • Posted on September 25, 2015August 26, 2019
  • Awareness

Diagnosing MND/ALS – I just don’t like needles and I was s*** at golf!

  • by onein300
  • Posted on September 9, 2015January 25, 2022

Favourite sites

  • Doddie Weir’s Foundation
  • Dagmar Munn's ALS blog
  • Ray's Little Ride
  • Ken Menkhaus’s ALS blog
  • How to Bank your Voice in 2 weeks
  • ProjectMinE – Getting to the Blueprint of MND
  • What is Motor Neurone Disease?
  • MND Research – Blog from the MNDA
  • The Boxgrove – My Physio
  • 26 Miles for MND!

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Onein300 Top Picks

I’ll take a P, please Bob

Living with ALS/MND is bad enough but we have this to contend with as well!

Questions we might ask about clinical trial results (aka – A guide to surviving trial news!) Part 2

Questions we might ask about clinical trial results (aka – A guide to surviving trial news!) Part 1

I thought the weather report said it would rain!

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