Onein300 is my living with MND blog (Motor Neurone Disease), also known as ALS (Amyotrophic Lateral Sclerosis). I was diagnosed with MND in June 2014. This life shortening and disabling disease strikes sporadically and has no cure. I cannot think of another disease with such a consistently horrific prognosis. It is typically fatal in 2 to 5 years. There is current no cure or effective treatment. Stephen Hawking is probably the most famous person in the world who ever lived with MND. But he was a very unusual case, having survived for over 50 years! This is very untypical.
But just how common is MND?
It is considered rare. However, the estimated risk in any one person’s lifetime is 1 in 300! Shocked? I was.
If your life was a single week draw in the UK lottery, your chance of getting 4 out of 6 numbers is about 1 in 2200!
So why therefore is this disease considered rare? Take a read of my Facts page to find out why (and why actually it is not).
My blog is now some 6 years old, and I have been fortunate to have a slow progressing form of the disease. I look back at my posts, and remember many readers who are longer with us.
For those of you new to my blog, I hope you fund my mix of, frankly, quite silly posts, along with very serious research commentary and analysis.
The views expressed on this website are my own opinions (and can be quite random!!) and do not express any view of doctors, consultants or associations etc etc.
Take a look at my weekly posts including voice banking, diagnosis, treatment, research and symptoms. I try to keep it up beat and informative. Please enjoy and comment.
Click on this further introduction, for a bit more of a summary following over 6 years of posts!
If you enjoy my, sometimes, whacky look at a serious disease, perhaps you might consider donating to my MNDA fund?
All money goes direct to the Association.
On with the blogging!
Lee – onein300 – the MND Blogger.