My Story

My name is Lee Millard and at the age of 51 in June 2014 I was diagnosed with MND (Motor Neurone Disease).

I first noticed that something was wrong when in 2012 my right leg started to ‘flick’ at the start of my regular 5 mile run. I thought nothing of it as it went away after 200 yards of running. However, a few months later I decided to see my doctor. He thought it was nothing, but sent me to a sports physio to look at my back. Off I went 2 days later, and the sports physio took a look. She noticed that I had brisk reflexes in my right ankle. You could see the look in her eyes! Something was not right. She turned out to be a smart cookie. I was then sent to see a Neurologist.

To cut a long story short, over the next year I underwent tests, and after the test of time (the neurologists greatest tool with MND), I was diagnosed with MND in June 2014. MND is a disease of exclusion, and all other potential causes had to be examined/excluded.

In that time, I have had a number of symptoms, mainly affecting my ability to walk, and also now my speech is affected.

I am now 58 and still walking (badly), and progression is slow.

Who knows what the future holds for me and my family. But who knows what the future is anyway?!

Life is now about living and at the same time trying to make a difference.

Have a read of my blog. It’s not your usual adversity blog I promise. It contains regular silly posts, but also serious Research posts including my devil is in the detail series. Have a quick tour of the site. Enjoy!